roller coaster ride

kind of been a roller coaster ride kind of day. it was originally going to be rehab, followed by lunch and shopping at providence. well that was changed when i woke up feeling like crud. i went to rehab, and when we got there i was feeling way worse, with severe chest pain, and a really hard time breathing. my SATs were lower than normal, and my heartrate was raised a bit. the trainer wanted to do an EKG just in case. the EKG was fine, just showed a fast heart beat {duh}. but we called dannette anyhow and she said to go on home and the Dr. would let us know what we should do, but she doubted we would need to be seen. well we came home and i took a nap and at 12 she called and said Dr W wanted an xray just to make sure it wasn't a collapsed. which i knew it wasn't, it had already stopped hurting but oh well. so we went back to vandy, got the xray, and decided to get Pei Wei for lunch! so it all turned out ok that we went to get an xray. which by the way was normal. we were told to be at vandy early monday morning for the H1N1 shot. so yippee, ill be first in line. also.......

mom talked to transplant today.... the NP said that everything looked great, and im ready to be listed; she has turned everything into insurance and we're waiting on them to approve it. as soon as they approve it, i will have a number and be listed!! yay! now. some of you are probably wondering what i mean by number... i think i explained in a post a while back, but cant remember, about how the listing works. the evaluation a few weeks back was all to come up with whats called an allocation score. this score is based on a 1-100 scale. the higher your number the more "important" or "urgent" your case is. with this score and the matching factors of blood and tissues is how its decided on which pair of lungs you will get. i hope this isn't confusing. im confusing myself writing this. so some time early next week i should have a score. and i will be officially listed.

i think this is all kind of crazy. i had no idea back before the evaluation that i would be listed when the eval was over. i thought it would still be a few months. i have learned so much in the past month my brain is in overload. i feel like i have so much more to talk about on here but cant ever remember what it is. or if ive already told you. so feel free to ask all sorts of questions if you have any. this weekend looks low-key, considering i have felt so bad today, i need to take it easy.

until then,

leigh allyn

Prayers:
~my patience. my health.